What I am currently taking, and what I've tried:Currently using Helminthic therapy, Omega 3 fish oil, enzymes, probiocics, Vitamin D 5,000 MG (due to blood work),
IV vitamins or iron in an emergancy, Prednisone taper, and Humira ( when I was in the hospital). Tried fecal transplant.
Trying to fix some hormone/cortisol problems w/ melatonin, progesterone, and few other supplements. Oh, and I've been gluten free for about 6 years. Some things helped, others hurt.

Wednesday, September 7, 2011

Ding dong! May I borrow some poo?

 Our doc went to a conference, and told us they discussed a new therapy. Something is terribly wrong with your intestines. Your bacteria is overrun by negative bacteria, and you need to fix that! So, you get out your Tupperware container, walk to your neighbor's house, and "ding-dong"..."may I borrow some poo??". Sounds crazy, but according to research, just might be they new "medicine" for many of us. It has been shown to help all sorts of things, infection being at the top of the list, but also some autoimmune disease and even obesity.

We finally tried it. We called it HPI (human probiotic infusion). Otherwise known as bacteriotherapy, or fecal transplant.
I started talking with a doctor in NY about the process. He was willing to look into everything, but wasn't sure about the efficacy with Crohns. Although they have seen amazing benefits with C diff patients, and some improvements among Ulecerative Colitis patients, the success rate hasn't been great among Crohns patients for some reason. I speculate that it is because one will encounter trouble getting the implant into the small intestines, which are more commonly associated with Crohns. But, I am getting ahead of myself here...
After many phone calls, and advise from a few friends, I found Dr. Silverman's protocal. He is a GI that has done this proceedure with some success, and come up with a list of test to do on the donor as well as how to go about doing the HPI on your own at home.
Since my husband was going to be gone for several weeks, I was staying at my in-laws while he was away. Since my family seems to be the genetic carrier for many intestinal related issues, we decided to look to his. My mother-in-law is a retired nurse, and was willing to help with the procedure. She also has had no real illness to speak of, especially intestinally. Also, she eats a great diet; which I found important. SO...of we go to the doctor! We brought our ideas, along with the list tests to be done beforehand. The last thing I wanted was something new!! Fourtunatly, he was very agreable. All the tests came back negative, and we were on to step two: infusion.
Before we started, I went again to get hydrotherapy. I figured having it all cleaned out might provide a better atmosphere for her good bacteria to take over mine. Plus, getting the mixture up there when full might not be the best proceedure. In any case, after my trip to the hydrotherapist, we set out to make our first concoction. Our first go round, we added her "poo" to some distilled water, mixed shortly with a blender (a designated one, that we got from a yard sale for this purpose!) and filled an emptied fleets bottle. We had to take out the filter and use lots of lube, but it worked. I took a nap, hoping to keep it intact for a few hours. Unfortunatly, round one kept for only about 45 minutes.
Round two. We mixed up the mix, but this time we decided to get a prescription for saline. Maybe that would keep our bacteria happy. We also tried a larger enema bag, trying to get the mix up there a bit higher, but it didn't seem to work quite as well, so we went back to the fleets. This round I held for a few hours (4 I think), and was satisfied that was a good time frame.
Per Dr. Silverman's protocol, we repeated this 6 times. I did see major improvement in the following days, but I was on a prednisone pack, and I guess it was masking my symptoms, because they all came back in a few weeks. We tried the proceedure again a few weeks later, to find that we didn't get the same results.
I am glad that I gave it a try! There were absolutely zero side effects, and I am always interesting in alternative methods to some of the toxic meds that are out there! I also think that it can be helpful. We don't know what took, or what help my gut got. Just because I don't see immediate or significant effects, doesn't mean we should all give up on the idea. Maybe someday, I'll do it again, not that I'm over the ick factor. In any case, I know what I'd do where I ever to encounter c. diff!! Ding dong...

5 comments:

  1. Thanks for sharing your story. It reminds me when I was filming Matt Robinson do this. We drove over to his friends house and yes, rang the door bell and he had his sample in tupperware and a plastic bag!

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  2. Thanks for sharing this, Rachel. I've heard about this and have tried many of alternative treatments, but not this one. It's inspiring that you are willing to share this type of "adventure". I hope you are feeling well today.

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  3. Hi Rachel. In cases like this I wish like on FB there was a "like" button to click cause I really don't know what else to say. Wow.... good for you! Many prayers and hope your on the road to recovery. Love and miss you, Aunt Nicki

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  4. Wow, did you tell the hydrotherapist why you were there? That would have been hilarious. Good luck to you!

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  5. There is a lady who wrote a book about this. For Crohn's it takes many months of regular infusions. Her name is Sky Curtis and her book is here:
    Guide book on how to do it (cost = $100) from Sky Curtis, Toronto, Canada:
    http://fecalinfusions.com/

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